Spirituality

Perseverance and Adversity

Yesterday at church we had a lesson on adversity. The major theme of the lesson was that we need adversity in our lives because overcoming it makes us better people. I believe this is true. The most self absorbed and least empathetic people I’ve known are those who have never had a hard thing happen to them. The older I get, the fewer of those people I know. We all get knocked flat eventually, hence the need to address this fact in a spiritual context. People of faith have to reconcile belief in a loving, all-powerful God with the fact that life is terrifyingly unfair. The lesson kept returning to the message everything happens for a reason. Many of the women around me seemed to find that very comforting. I sat there and thought how I don’t believe that God deliberately smites people with problems to make them grow, but that I do think he allows natural processes and choices of others to bring pain. I’m sometimes angry with Him about that. I also thought of dear friends who I knew were hurting right that moment and how hurtful it would be if I were to say such a thing to them. In fact just the day before I’d given one friend this card which reads “Please let me be the first to punch the next person who tells you everything happens for a reason.” (You should check out all the empathy cards at that link. They are the cards that cover the cases which are not covered by all the other cards. Brilliant.)

The thing is that when people are hit with something breathtakingly hard, they have to grieve. Part of that is being angry, really angry, often angry at God if they believe in one. Those of us who are bystanders to that pain want to be able to fix it. We want our loved ones to be at peace emotionally even if the hard thing continues. We say we want it for them, and we do, but we also want it for ourselves because watching pain reminds us that someday pain will come for us. And we have little control over what it will be or when it arrives. So we try to take the person who is in pain and jump them ahead to acceptance. We want to give them an answer. But that doesn’t work. Particularly if they are in the part of grieving where they need to be angry.

I don’t think I understood the value of anger in adversity until I read Rachel Naomi Remen’s My Grandfather’s Blessings. The book is a hundred small stories from her experiences counseling the dying, the recovering, the doctors who help the dying, and all those in the blast radius of cancer cases. In one of the stories, Ms. Remen says she is always glad when she sees anger in a patient. Anger comes from a vital will to live, to demand that the world be different and better. Angry sufferers are more likely to fight and to recover. Anger bestows strength and forward momentum. The gifts of anger can obviously be used in destructive ways as well as constructive, but the vital energy of it is critical to surviving hard things. I’ve recommended Ms. Remen’s book before, I do it again here. It is worth reading.

After listening for a time to the church lesson, I raised my hand and expressed the thoughts in the prior two paragraphs. I added that when we are close to someone who is wounded, stricken, injured, our job is to mourn with them, be angry with them, and walk along in their journey toward acceptance whatever peace is right for them. We can’t give them our answers, they must find their own. I’m pleased that many of the women who were saying everything happens for a reason, nodded along to this as well.

This morning a friend (who is mid-chemo therapy) posted a link to an article about Death and The Prosperity Gospel. My church is not the only one where “everything happens for a reason” is the party line. The article does a fantastic job of taking a look at the harmfulness of assuming that blessings and prosperity are rewards for good behavior. That doctrine is comforting because it provides the illusion of control. If we are good, then our lives will be blessed. I even think there is some truth to that. Our choices definitely affect our outcomes. This is an important lesson for people to understand: choosing well makes life better. Yet we also have to acknowledge that life is hideously unfair. We do not start on even ground. We are bequeathed unfair loads of challenges, economic status, and family situation at birth. This is compounded by societal unfairness that smooths the path for some people and smashes others. Our choices can make our lives better, but prosperity is not an accurate measure of goodness.

The paragraph in that article which hit me most was this one about grieving:

One of the most endearing and saddest things about being sick is watching people’s attempts to make sense of your problem. My academic friends did what researchers do and Googled the hell out of it. When did you start noticing pain? What exactly were the symptoms, again? Is it hereditary? I can out-know my cancer using the Mayo Clinic website. Buried in all their concern is the unspoken question: Do I have any control?

I’ve actually seen this happen. Years ago I was present when a friend of mine informed people that he had five years to live. I watched him bear the brunt of their reactions, person after person. He ended up comforting his friends about his impending death. I think of that, and I think of the article about How Not to Say the Wrong Thing. It can be so hard when a friend gives you bad news to not try to make it better. It is hard to not attempt to exert control over the situation. Yet what sufferers need is for us to meet them where they are and just be with them in acknowledging that what they’re going through sucks.

I wish I had better answers than this, but I don’t and that is the point. I would dearly love to be able to fix it when Howard has a depressed day or when my son is so lonely and isolated that he lays in bed crying. Instead I just have to be willing to stay in the pain with them and remind them that the pain will subside, that there are choices we can make which may help, that they are loved by me and by God, both of whom hurt for their hurting. And that if they listen carefully, God will help them turn this experience into future strength and usefulness. If they need to be mad at God for not fixing it, I stay with them for that too. So does He. It doesn’t feel like enough, but over and again it is what is needed. Mourn with those who mourn. Comfort those who stand in need of comfort.

Smashed

photo

It was not the outcome that anyone intended, yet somehow we ended up with shards of something that used to be whole. The shards were sharp, able to do more harm if they were not handled carefully. This is the story of many of my days these past couple of years. It is the story of yesterday when a person came to my house to talk to me about behavioral issues with one of my kids. The person departed and I was left with shards, not even sure where I fit in the metaphor. Am I the broken thing? Or am I the one who has to figure out how to clean up? Feels like both.

I went to my room and cried for a while. Then I talked with my child and we both cried for even longer, because harm has been done and needs to be made right. My child is both harmed and the one at fault. I have to spend energy preventing my mind from trying to analyze all of the moments that led up to the one where things were smashed. As if I could alter the outcome by finding decision points that led to alternate timelines. My mind also tells me that I’m blowing it all out of proportion. It is, after all, only a small broken thing. Clean up will be quick and we’ll move onward.

Except that I end up smashed (or cleaning up after smash) so often lately. Those tiny shards scatter themselves and sometimes I find my self bleeding because of shrapnel from something I thought I cleaned up long ago.

This too is part of the holiday. The house is filled with beauty, but also with things that are more prone to breaking. The pressure to make sure the moments are glowing and meaningful, also means that some of the fragile things will crack. I may be one of the fragile things. I am to be my best self, but that is difficult in a season which increases the demands on my limited resources. Even the articles, speeches, and pleas to simplify are commandments with which I must struggle to comply. Thus I find myself contemplating the shards of an ornament on the floor of the front room. Thinking about all the ways in which Christmas breaks people.

And also the ways that it heals people. And how sometimes things must be broken before they can become something else. And how the metaphor begins to fall apart before I’ve found my way through to an epiphany. I would like to have an epiphany. I would like to have a shining moment where I can clearly see that all the smashed days were necessary, part of a grand plan designed to help me and mine grow. I’m certain that some of them were critical. Perhaps yesterday was one of them. I’m also certain that some of them were just the result of human beings clumsily bumping into each other and accidentally doing harm. It would be nice to be able to see which days were which.

Or maybe it wouldn’t. Maybe I’m better off treating all the smashed up days as if they were important. Maybe it is only in trying to find meaning in the shards of something broken that the brokenness gains any meaning at all. I do believe there is a plan, and it begins with me fetching a broom. We learn by doing, struggling, smashing, cleaning up, and moving on.

General Conference Notes

Usually I try to make my blog entries generally accessible rather than specific to my religion and context. But twice per year my church has a set of meetings called General Conference that are broadcast worldwide and during which the leaders of my church speak about matters of scripture, faith, family, doctrine, and policy. The most recent conference was held this past weekend and I had a lot of thoughts I wanted to write about. Some of it may be more specific to my faith than usual. I am a member of the Church of Jesus Christ of Latter Day Saints, commonly called Mormons.

This particular conference was filled with talks that seemed directed to me. So much so, that as one talk finished and the next talk began, I often wished for a pause. I wanted time to assimilate and think through my reactions before launching into a new topic. Fortunately the talks are still available via streaming from the church website lds.org. Also I’ll have a print version in the church magazine next month. There will be ways for me to review the information and pause to think it through. Truthfully, it is not that the words spoke directly to my various situations. It is more that the words exist and all of the experiences and thoughts in my head exist, then there is this space between the words and my thoughts where inspiration flows. That space is where the words are transformed into the messages I need to have epiphanies about my life. I need conference, church, and scripture study because I have to get into proximity with good words. I need the inspirations that come into my head as a result.

One of the thoughts, which I’m still mulling over, came as a speaker was telling of the power of the atonement of Christ. He said that Christ’s healing is complete and leaves no scars. I thought of the people I know who struggle with mental illness and with ongoing problems as a result of emotional trauma. Observation and science tells me that they will struggle for most of their lives. Yet I do believe in the power of Christ to truly heal. I do not think that the people who struggle, myself included, lack faith enough to be healed. Yet God does not heal everyone. Some of this I can ascribe to eternal perspective rather than earthly perspective. Heavenly Father and Christ know that the pains of this life are temporary. They know that struggle is how we grow. Striving to understand suffering and miracles is the thought-work of a lifetime. My comprehension continues to evolve. Sometimes I am able to move forward in faith, trusting that all will be made clear. Other times I am more frustrated and angry. I don’t have any answers, but I think it is good for me to open my mind and heart to these questions. Conference reminds me what the questions are.

I was much taken with the talk by Devin G. Durrant. He described a process for picking a scripture each week to ponder and memorize. He made up a word, ponderize, to name this process. I don’t like the word. It feels cutesy and diminutive to a process with great spiritual potential. As he spoke about the process, I knew that it was one that I need. He bore a powerful witness of what this process can give to people. I loved listening to that witness, though I winced a little every time he used his word. I’ve put up my first scripture. I’ll be thinking about it this week. And I’ll be trying not to think about made up words.

My grandmother is dying and I am watching my parents navigate the decisions and grief that are inherent in that process. Over the last months I have observed her decline. A few months ago she was in rehab to learn to walk again after a surgery. Now she is in a permanent care facility and physical therapy is focused on getting her to eat. I will be surprised if she is still here at Christmas. I’ve watched this process tear my Dad apart. My Grandma is his mother and he has no siblings to share this burden. I watch, knowing that someday it will be my turn to help parents in their decline. I am learning from their example what to expect and how I might handle it. With all that in my mind, I found David A. Bednar’s talk on Sunday afternoon to be profoundly comforting. In his words I was able to see that a reduction in physical capability only changes what a person can offer the world. It does not render the person irrelevant. To quote Elder Bednar “Physical restrictions can expand vision. Limited stamina can clarify priorities. Inability to do many things can direct focus to a few things of greatest importance.” As I listened, I understood that growing old and infirm can be a gift both to the aged and to those who care for them. It was good to feel that. I’ve been quite focused on the hard parts. There is grace in my Grandmothers imminent departure, God’s grace. As her memories become confused, the anxiety which plagued her whole life is dropping away. She is becoming distilled, ready to travel elsewhere. And we are all becoming ready to let her go.

I will be continuing to interact with the words and messages of this General Conference. I have more inspirations that I need. For now, life is good and all my people in my house are aimed in good directions.

Doing Fine

Each week during church I open my mind and heart, seeking for inspiration and direction about the things I have been doing and the things I should be doing. Some weeks I get clear answers, others I don’t. This week I got a very clear “You’re doing fine” as I was contemplating my job as a parent.

I thought about that answer after it came. It definitely wasn’t an indication that I can rest and be done now. It wasn’t telling me I’ve done enough. It was more like the encouragement from a personal trainer during the middle of some difficult exercise.

“You’re doing fine. Now adjust your arm a little bit and shift your stance. That won’t make it any easier right now, but it will make this effort more effective in accomplishing what we hope to accomplish in the long run. Oh, and stop trying to carry that extra weight on your shoulder, it isn’t helping anything.”

I’d love to hear “That’s enough. You can rest.” Instead I get told not to spend energy worrying how I’m doing. I’m doing fine. Which is actually good news, because I was spending energy worrying that I was getting everything wrong. Maybe if I can stop worrying, I can use that energy on something that makes life better.

Walking the Spiral

My breath came ragged through my open mouth as I walked quickly up the slope. Dirt and rocks crunched under my feet as they walked along the narrow trail in the grass. Many other people had walked this path before me, as is to be expected when one goes walking inside a state park. None of those people were visible now. The parking lot had been empty when I pulled up. I’d intended to tweet a cheerful photo. “Look how beautiful Fremont Indian State Park is.” I’d taken the picture, written the words, hit send. No service. The park was in a canyon, hidden from cell towers. It was a dead zone. No one knew where I was. Howard knew I’d headed to southern Utah to pick up our daughter from college, but I hadn’t mentioned my intention to stop at the park. It had only been half an idea, something I was mulling over. I’d intended the tweet as a digital bread crumb, a quick note to let people know where I was. Instead I stood on the asphalt, wanting to seek out a place where I’d been before, wondering if I really should go hiking solo, knowing the trail was an easy ten minute walk, and finally deciding the park was a safe enough place. “This is how people go missing.” I thought as I took the first steps on the trail, but I walked up anyway. I was drawn there by a desire I didn’t fully understand. I promised myself I would turn back if I didn’t find the place in ten minutes of walking.

My children and I had stopped at Fremont Indian State Park on a whim in the fall of 2012. We were on our way back from a college visit where my daughter got to walk the campus and realize that she really did want to attend that school. All four kids were with me on the trip. I hauled all of them out of the car and made them walk trails with me. None of them were particularly thrilled about it at first. Slowly they began to enjoy themselves and we all rejoiced when we found the spiral built in a meadow. The kids ran their way to the center. I have a photo of the four of them standing there, triumphant. Even as we walked away, I knew I wanted to visit it again. The memory stayed with me. I thought about stopping each time I drove past the freeway exit as I traveled on trips to fetch my daughter or drop her off. “I really need to go back there.” The thought bounced around in my head. Each trip had a dozen reasons why I didn’t have time. Two and half years of driving past and I didn’t go back. Until I did, because on that day the pull was stronger. I’d had a rough few months. I was mired in depression, grief, and other emotions I couldn’t quite sort. I didn’t know what I needed, but I knew I really wanted to see the spiral again. So I stopped and I hiked. Solo.

The trail was clear and did not branch. There was no risk of getting lost. As I walked, I measured the land with my eyes. Did I remember this place correctly? I thought I was on the right trail. It seemed that I was traveling ground I’d been over before, but two and a half years had passed. I didn’t remember clearly. I wondered if the spiral would still be there or if it had been neglected. I was nearing the end of my ten minutes time limit and ahead of me was a rise. I told myself that if I couldn’t see the spiral from the top, I had to turn back. I didn’t want to, but every step took me further from where I was expected to be. I could feel responsibility calling me back to my car. My daughter needed me to help her load her things into my car and to help her finish cleaning. After that I was needed at home. I had responsibilities and they tugged on me as I walked upward.
Spiral
There it was. My breath caught in my throat and I realized I’d been worried that I wouldn’t find it, that it hadn’t been real, that it had vanished like some modern day Brigadoon. I half wouldn’t have been surprised at that. It felt like a place that could just vanish. Or perhaps a place that could only be found by serendipity or need. On that day I found it. My eyes began to water as I walked the distance to the open end of the spiral.

2012 was before. It was before all the transitions that our family made stepping all the kids up, one to college, one into high school, one into junior high. It was before my younger daughter had panic attacks. It was before my older son began his long slide into depression. It was before we recovered from that. It was before I discovered that our recovery was a limited one. It was before my younger son also had panic attacks. It was before all the appointments, therapists, doctors, medicine, and meetings. It was before something in me broke, or gave up, or grew too tired. The person who visited the spiral in 2012 could honestly look her depressed son in the eyes and promise him it would get better. The person I was when I returned wondered if that was true. I wondered if I had been lying to him. I knew I had to keep going, taking the right steps, but somehow I’d lost touch with the belief that we could pull out of the emotional mire which kept reclaiming us. We’d seem to be out, but then the troubles would come again. My feet stood at the opening to the spiral. The last time I’d been here was before. I didn’t know why I needed to come again, nor why I wanted to cry at being there. I stepped forward and began to walk.

I once read about a meditation path in the center of a garden. It was a twisting walkway leading toward a center point. A person was meant to walk the winding path and examine whatever thoughts surfaced during the walk. I took a deep breath and as my feet walked, I opened my thoughts. “What do I need here?” I asked.
Center
Walking a spiral feels like going nowhere. I passed the same scenery over and over. As I got closer to the center this was amplified, I saw the same things, but they went by faster. At the end I felt as though I were spinning in a circle even though the speed of my walking had not changed. Then there was the center. And I stopped. I sat on the log and waited. I took deep breaths. Birds chirped unseen. The wind blew past my face and lifted tendrils of hair. I wanted to cry again, but in the center the tears were happy instead of grieved. I sat there, feeling happy, feeling connected to the person I was before. It was the first moment in a long time where I could see that yes, we kept getting mired in the same emotions. We were seeing the same troubles again and again, but somewhere there was a center where the trip might begin to make sense. I just had to find the center. Then I had to work my way out from there. I sat for long minutes. I did not want to leave. I could feel my obligations and responsibilities waiting for me beyond the edge of the spiral.

After a time, I stood and walked my way out along the spiral. I saw the same things over again, but this time the more I walked, the more the sights slowed down. Then I was at the open end and stepped free.

Finding and walking the spiral seemed such a silly thing. I still don’t understand how so much meaning got attached to it. Yet in that step out from the open end of the spiral I felt like I’d left some grief behind and took something hope-like with me in its place. The spiral helped me remember that there was a before, and the existence of a before heavily implies that somewhere ahead of me there is an after. I just need to keep wending my way along the path until I get there.

Coming Home from Church

I came home from church early with Patch because he was having a rough day. This has been the story of all my Sundays for the last two months. Someone in my house is having a rough time. Someone leaves early. Someone cries because life feels like too much. Often the someone has been me. I guess attending church pries us open and lays the emotions bare. I hope that we will make our way back to a place where church is for peace and comfort instead of raw emotions.

I broke down and bought pill boxes last week. They line up, four in a row, each with a week’s worth of pills sorted into their compartments. When I see those pill boxes, I have to face the fact that five out of six of us are on daily medication or vitamin supplements. There are nine prescriptions which I have to track and refill when they begin to run out. In theory I could get them all onto the same schedule and make one massive medication run to the pharmacy once per month. It never works out that way. I see the pharmacists 2-4 times per month. The pill boxes are an acknowledgement that I can’t track it daily the way I’ve been doing. The effort of remembering who has taken meds and who hasn’t becomes too much. Howard manages his own. I manage the rest and, in the dark of early morning, I must be able to run on automatic. Now I think through the medicines once per week instead of every day. It is a tiny simplification, a small thing that reduces the daily burden. Yet I didn’t quite realize what a burden it was, until I had all the pill boxes lined up like that.

The other thing I must face when looking at those pill boxes is the fact that I’ve become the mother who medicates her children. I was more comfortable with that when I had fewer children on medicine. I could use the non-medicated children as evidence that I was responding to need rather than jumping to pills as the solution to life’s troubles. This self-reassurance is less available now. All I have left is to cling to the knowledge that mental health is a process. I’ve not put my kids on meds and called it good. We have doctors and therapists involved. It is a constant process of evaluation and re-evaluation. Is this working? What does this child need now? How does that compare to what was needed three months ago? Six months ago? Last year? That too is exhausting. There are so many decisions to make. Which really is just a description of parenting whether or not medicine is involved.

It snowed Christmas Eve. I went to bed when things were wet, brown, bleak. We woke to the world coated in white. All the edges were softened and made beautiful. I’d heard this might happen, and the moment I did, I prayed that it would be so. I wanted Christmas to be different. I wanted to get to that day and set down the emotional load I’ve been toting around. I wanted Christmas to be a respite. At least for one day. Then the snow came, and our celebrations were everything they needed to be, and at the end of the day I was at peace instead of weary.

Of course the next day the snow was less lovely as it turned to slush and then ice. There is always a day after. This can be either discouraging or hopeful depending on what sort of a day it was. For me, I can feel the holiday continuing to work in me. I feel like I’m convalescing during this holiday space where the kids are out of school and the work burdens are lighter. I haven’t much time left to rest. Life will resume its regular pace next week and I have to hope that I’m up to speed.

I went back to church after Patch had settled and all the talking was done. There were only ten minutes remaining, but I went anyway. I wanted to be in the building and to be comforted by being near the people there. I came in just in time for the teacher to close her lesson. I sang with the closing hymn and listened to the prayer. Then the meeting was done before I was ready. I could have used a longer time sitting and listening. Just sitting there gave me strength.

In the hallway after the meeting I was greeted by friends. Once again I remembered how complicated it can be to answer the question “How are you?” I want to be truthful. I want to bring my friends in, and include them in my life, but some conversations are much too complicated for the hallway of the church building. Also, I’m kind of tired of crying at church. So I say that I’m fine, because that is true. My life is good in so many ways. There are dozens of joyful stories about the holidays. Our house has been filled with laughter during the past few weeks. So I pull out those stories and tell them. Yet, in the telling, I have to talk around all the worries that continue to plant themselves front-and-center in my brain. It is like being short and sitting behind a tall person at the theatre. I can lean this way and that to see the bright and beautiful display, but the view is not clear and I kind of want to complain about what is blocking my view.

The ice crusted snow crunched under my feet as I walked to my car with Gleek. The other kids had made their own trips home from church already. Gleek made a joke about the cold and I smiled. We passed Howard walking on the drive home and he hopped into the car. The three of us entered the house to find Kiki playing a game with Patch and Link. They were laughing. I watched them for a minute and treasured the sound of the laughter. Next week we’ll go to church again. Perhaps some of us will come home early again, perhaps not. I’m not going to pray for a week when we all stay. I’m going to pray for us all to work our way through the challenges immediately in front of us. I trust that when we do, the other things—like peaceful church attendance—will take care of themselves.

Saving Christmas

There are a bajillion Christmas books and movies out there where fill-in-the-blank protagonist saves Christmas. Usually “save Christmas” means “enable Santa Claus to deliver presents on time.” I’ve seen some wonderful iterations of this story and some terrible ones. This afternoon I was faced with yet another version and I had a moment of clarity. I figured out why How the Grinch Stole Christmas is one of my very favorite Christmas stories. It is the only one I’ve ever seen that says Christmas is strong instead of weak. It says that Christmas can’t be destroyed, that it exists separate from presents and the trappings of traditional celebrations. In fact, Christmas saves the Grinch, not the other way around. That’s a message I can really believe. It is also a reminder that I need.

I often get tangled up in my own version of saving Christmas. There is this long list of things that I feel like I must do correctly or else the holiday will be ruined. I spend so much energy doing things that are the metaphorical equivalent of saving Santa. I need to remember that there are better Christmas stories to dwell inside. Give me a Herdman-style Christmas where somehow the chaos of everyone colliding with each other turns into something beautiful after all. Or the Christmas where everyone sings whether or not there are presents.

I guess this year I really need the stories where things turn out okay whether or not the protagonist makes all the right choices. Which, when I think about it, is right in tune with the first Christmas story. That’s the one where a baby is born and he becomes the means by which all of our mistakes can be redeemed. That’s the point, we don’t save Him. He saves us. I don’t have to make Christmas or save it. I need to open up so that it can take up residence inside me.

Making Bargains with God

I bargain with God. I know I’m not really supposed to. I’m supposed to exercise great faith, put things into his hands, and follow the instructions I’m given through inspiration. I try to do that. Sometimes I succeed and for a while my life is far more peaceful even if the events and emotions are all about turmoil. But sometimes when I get an instruction, an auto-bargaining circuit kicks in. In essence I turn to God and say “Well if you want me to do that, then I need help with this.” Sometimes I get immediate help with this and the pathway is cleared for that. Other times my bargain only gains me a sense that God is amused when I bargain. He certainly doesn’t always join me in bargaining. In fact I suspect our bargains are rather like the bargains I used to make with my toddler kids where I conceded one small point that was no loss to me so that a far more important purpose could move forward. Yes honey you can bring the toy, its time to get in the car now.

A few months ago I got an unexpected, whip-fast response to a bargain. I had an essay book project in mind. I wanted to push it through in a hurry. So I shot a bargaining prayer heaven-ward. “If you want me to do this, you’re going to have to help me.” The response was clear. You know which book I want you to write. Encapsulated with those words were the knowledge that it was House in the Hollow, not an essay book and that if I continued to push on the essay book it would only be with my own strength. No assist. My strength is not strong enough to carry all the things in my life. I certainly don’t have enough force of will to push through and market an essay book by myself. All of my writing projects have felt important as I wrote them. I did the necessary work, knowing that the end result was something with a larger purpose. In some cases that larger purpose was to teach something to me. This is not the purpose I hope for when I write a book. I want it to go out into the world and touch other people. Yet in God’s eyes, me writing a book that changes me is every bit as valuable as me writing a book that changes someone else. It is hard for me to remember that and believe it. But the critical part is that I did not write alone. I was supported and led throughout each project. I can’t imagine trying to write a book without that.

So I know which book I’m supposed to be writing, yet somehow I’ve been dragging my feet on getting it done. I don’t know why. It probably has to do with fear of not being good enough or some other flavor of self doubt. Logically I know I just need to write the words and worry about making them be good words later. Yet I find a hundred other things to do. Many of them are important things which my family needs. Only I know it is not just the press of important tasks, because I’ve been filling spaces with things that are far less important than writing. On the days I do work on HitH, suddenly everything else goes much more smoothly. The contrast is stark. It is not that my other paths are being blocked, but this one path is definitely being made as attractive as possible. Which, of course, led me to using it as a bargaining tool. “Okay God. I’ll write on HitH first, but I need you to help me with the parenting stuff that has been driving me crazy.”

I haven’t gotten a clear answer on that one yet, but it feels like a worthwhile bargain to attempt for a time. Now I just need to stick to my part.

Writing in Church

My observance of my religion is not practiced in grand gestures, lone pilgrimages, or big revelations. It is me sitting on a padded pew with an open journal in my lap. Sometimes I write for pages, not great spiritual insight, just the daily cares that are in my head. I write all the things which I think are too boring for others to want to listen to. I repeat myself because repetition of thought is necessary in a life that is full of repeated tasks. In that journal I am allowed to spill words without concern for audience. Or rather I’m writing to a very specific audience: myself and God. I like writing my thoughts during church, because the location affects the shape of those thoughts as they spool onto the page. I never can be sure afterward whether there are threads of inspiration in those thoughts.

I do listen to the speakers and the teachers. I probably should be better at putting down my pen and giving them full attention. Some weeks I do. This was one of the weeks where my thoughts were noisy and I had to pin them to a page where I could examine them. I’ve learned to trust that when there is something in a talk that I should hear, I will suddenly find myself listening without having made a conscious decision to do so. Words, phrases, stories, jump out at me sometimes. Even if I was lost in my own thoughts the moment before. Sometimes I write down the pieces which came to me, a non sequitur in the middle of other thoughts.

On some Sundays I flip through things I’ve previously written and my own words jump out at me. I meant them one way when I wrote them, but I need them in a different way when they come to me again. I can only flip through a few months of thoughts. Anything older than that is in a different notebook. The physical requirements of the pages force me not to dwell too much on the past, but to keep moving forward.

I write journals at other times and places besides church. I have the stack of notebooks to bear witness to this. I used to segregate my thoughts into different notebooks, one for life journaling, a different for story fragments, a third for random notes of phone numbers and measurements. Now all of these things go into a single book, one that fits into my purse. All of it is there and none of it is explained. Sometimes I picture a future historian puzzling over cryptic fragments of sentences. A couple of times that “historian” has been me.

Writing my thoughts during church is a small observance. It is a way for me to commune with myself and with inspiration from God. I come away with a clearer plan for what needs to come next. Sometimes I’m given specific directions that are not always what I want to hear. Other times I’m reassured that my choices are good. I don’t know if any of that is apparent in the words themselves. They probably read like someone rambling endlessly about the same routine things that she rambled about last week, last month, last year. Yet I know that last week the flow of feeling and inspiration which came with the words was different than this week. Small observances can be powerful, particularly when they are repeated over time. This is how I build my faith and give myself peace each week. It is how I rest and refill so that I can meet the week to come.

Married to Depression

I started writing this post six months ago. I started again four months ago. This week I opened it up again. It has been very difficult to get the words right, but then I realized that getting them right is impossible. There is no way that I can convey everyone, regardless of their experiences, what it is like to be married to someone who struggles with depression. The audience is too diverse and the experience is as well. My thoughts and feelings on this matter maybe similar to that of another spouse, or they might be quite different. It is impossible for me to get it right, because there is no “right” when discussing a subjective experience. I can only write about my experiences and hope that something in the story is useful to other people. When I look at it that way, the only way to get it wrong is to not write the post. So I wrote it. All 3000+ words of it. The first part is personal history for context. The rest is things I think will help other people in a similar situation. I put those things in bold for those who want to skim. At the very bottom are links to resources for those who need them.

Howard and I have been married for twenty years. It was not all bliss. Parts of it were gut-wrenchingly hard. In hindsight, many of those horribly difficult parts were directly related to Howard’s struggles with anxiety and depression. Other difficult parts were directly related to my personal stash of neuroses and emotional baggage. Yet our marriage is good. Our life together is more than good. We have built a partnership through the years that sustains us, a business, and our four children. Part of the reason our marriage is still good twenty years in, is because we pulled together when things got hard instead of pulling apart. That required conscious decision from both of us and bucketfuls of forgiveness that we splashed all over everything.

Howard is a bright spot in my life. He makes me laugh. He makes my days better, which is why it hurts so much when this amazing person vanishes into himself and radiates despair or anger. Suddenly instead of having a life partner who is carrying half the load, or even saving me because I’m stumbling, I have a person who is faltering and struggling to carry only a fraction of what he usually does. Not only that, but he radiates the bleakness and it permeates the house, actually creating additional stress and strain. These days we have good strategies for minimizing the impact of a depressive episode. That was not always the case.

The first time I really got to see inside Howard’s pit of despair was on our honeymoon. I was twenty, still trying to figure out who I was as an adult. Still trying to choose which life patterns I wanted to emulate from my family of birth and how I wanted to do things differently. I’d been around depression before with one of my siblings, but my family did not name it. It was the elephant in the room around which we all danced, trying to create a peaceful life. I carried that approach into my marriage. I knew Howard had mood swings. I’d witnessed some during the course of our engagement. But there we were, about halfway through our honeymoon, laying in the dark together while Howard cried and talked. He was letting me further into his heart than he’d ever let anyone before and it was terrifying for both of us. I stared into this deep, dark, seemingly bottomless pit and knew it could swallow me whole if I was not careful. It could swallow us both. And I did not want that to happen.

The next morning the bleakness had passed and my wonderful Howard was back, but I did not forget that the pit was a possibility.

Our family, the new one that Howard and I made together, danced with the elephant for decades. We built habits in the hopes of increasing the good times and reducing the bad ones. We looked for cyclical patterns. We evaluated. Early on I might have suggested therapy of some kind, but Howard had done therapy following the death of his parents and he reported it hadn’t done much for him. We were smart people, surely we could figure out the right diet, or exercise program, or spiritual regimen. All of these things were good management tools and we used them. Sometimes they helped. Other times they were powerless. We were powerless.

It was not until eighteen months ago that we named the elephant. That was when we finally saw this thing that had always been in the middle of our lives and said it was
A. real
B. a problem
C. something we should address.
That shift came because of many things, the most obvious being when our friend Robison Wells began speaking publicly about the mental illnesses that plague him. Rob and a couple of other friends showed Howard that admitting a problem could be a step toward better answers. There was also quite a lot of spiritual guidance and inspiration. Howard and I are religious people and we believe that we were guided. We also wish we’d been a little less thick headed to inspiration when we were younger.

The other thing that shifted was me. I’d been sorting some old emotional baggage (because of inspiration) and finally realized that my job was not to fix Howard, nor to save him. I was to love him no matter what. In fact that was a very clear inspiration directly to me, that Howard is strong and that my job was to love him, not fix him. After realizing that, I changed my answers. When Howard was filled with despair and said “I’m broken.” I stopped saying “No you’re not. It’s fine.” I allowed broken and suddenly let’s get this fixed became an option. Howard no longer had to live up to my need for everything to be fine. He finally had the space to consider and then seek treatment. This is exactly what I mean when I said that some of the difficulties were caused by me, even though I am not the depressed person. He worked so hard to be fine for me.

Howard has a problem with the chemicals in his brain. They sometimes make him feel like a complete failure as a human being, even when everything in our lives suggests exactly the opposite. It means that yesterday was happy, but today is miserable even though nothing has changed overnight. We tried all of the non-medicinal options for nineteen years and we still found ourselves occasionally trampled by the unnamed elephant. It was not good for us, nor for our kids. But a year ago things changed. That was when Howard saw a doctor and we started fixing the chemistry by applying medication, and it worked.

When I say “it worked” that doesn’t mean everything is all better now. Howard still has depressed days, but they aren’t as often and they don’t get as bad. Visits to the pit of despair are a rare occurrence, where they used to be regular. Howard has had the chance to experience a steady happiness where life feels generally good. More important, when Howard is having a bad brain chemistry day, we see it, we name it, and we know how to adjust for it. This is quite different than trying to adjust for an elephant that no one wants to admit exists.

If you have a loved one, a spouse, sibling, parent, friend, partner, who is depressed, and you want to help, there are some things I think you should know. The first and most important is this: You can’t fix it. There are dozens of ways that depression can be managed, healed, or even cured depending on the causes of it, but you can’t fix it for them. The depression exists in your loved one, maybe it is chemical, maybe it is situational, but it is inside them, not you. I tried to fix Howard’s depression. Believe me I tried. For eighteen years of marriage I adjusted all of the things I could conceive of adjusting in the hope it would prevent or alleviate the dark days. He’d have a dark day and I would clean all of the things because then a dirty kitchen wouldn’t add to the stress. I’d manage his schedule. I’d take over chores that were usually his. I’d hug him when the shape of the darkness allowed for that. (Sometimes it didn’t and he would flee from all touch.) I argued with him when the dark manifested as verbalized self-loathing.

My efforts helped some. I could see that they did, which is why I kept trying harder. I kept hoping that I could exert control over this thing. My efforts also masked the problem. When your loved one says “I’m broken.” It feels like the right answer is “No you’re not. Of course you’re not. Everyone has bad days.” The more powerful and helpful answer is to say. “Yes you’re broken. This depression is not normal. I love you anyway.” I love you anyway is the answer which allows the depressed person stop being strong, and start seeking help. I love you anyway gives the depressed person permission to change instead of demanding a status quo.

As soon as Howard decided that maybe he was willing to see a doctor, I did the research. I found out who we should go to. I made the appointment. I continue to make appointments for him from time to time. Because making an appointment is an act of will. It feels like an admission of illness. Making the appointment is a barrier that can be really hard to clear. I schedule half of the things which end up on Howard’s calendar anyway, so me doing this is a natural extension of what I already do. The frustrating piece was sitting on a waiting list for three months before they would make an appointment. (There’s a shortage of mental health professionals in Utah.) I went with Howard to the first appointment, but not any of the others. Again, this was me helping him over the first hurdle. After that I needed to stay out of the way because Howard has to own this process.

That is the second thing I want you to know: the depressed person has to control their own healing process or it will not work. I suppose it is possible to force someone to take drugs, but that doesn’t make them want to change the way that they’re relating to the depression. Howard had a huge emotional process to go through with taking medication. He had to grieve. I don’t know why daily medication requires grief, but I felt the same thing when I had to begin thyroid medication. It feels like weakness, or failure. It feels unfair. I see lots of friends who take psychoactive medications making snarky comments about the meds that they are on. Howard started taking the medicine and at first he didn’t want to see that it made a difference. Then he could see the difference and was angry at the medicine for working, because it meant he needed it. Slowly Howard is learning the ways that the medicine helps him. He’s learning that it is a useful tool and that it is okay to use all of the available tools in dealing with this.

Naming the depression changed everything. The moment that we looked at Howard’s depression and said “maybe this isn’t normal.” It changed all of our conversations on the subject. We started talking about the depression as if it were a phenomena that could be observed, which it is. We developed a taxonomy of sorts to describe the different variations. Howard directly asked me to be his spotter with the medications because he is very afraid of slipping into abusing medicine. He and I used calm times to discuss how to handle depressed times. I began to pay closer attention to the sorts of things he would say when he was sliding into depression and I learned when gently pressing him to take a pill was the right choice. I don’t have to press as much as I used to do, because Howard has learned to watch his own brain and identify when he needs the medicine. It took lots of practice. I am very much a part of Howard’s management process, but he is the director of it.

Even with excellent treatment there will still be hard days
. Some depressions can be worked through and resolved in a permanent way. We may yet find a way to do that for Howard, for now we still have to manage the down times. The hardest days are the ones where I’m not feeling completely stable myself. I could be ill, under stress, tired, or just feeling a little down. If Howard hits a depressive patch during those days, it feels massively unfair. I find myself angry at him for being depressed, even though I know he would never choose this. There was one day where all manner of little things went wrong, and I was ready to cry. That was the day when two of my kids had emotional meltdowns simultaneously and Howard was having a medium-down sort of day. I lamented to Howard how unfair it is that I never get a turn to fall apart while someone else picks up the pieces.

The “never” part isn’t true, of course. There have been many times when Howard has rescued me and taken care of me. This is one of the reasons the depressive days hit so hard. I depend upon Howard. He handles his things, I handle mine. We’re both full to capacity with things to do, but without warning Howard will be unable to do his things. He’ll feel like he’s never going to be able to do his things again. He’ll say that to me as he’s sorting the thoughts in his head. And the horrible little voice of anxiety will whisper in the back of my head “what if he’s right?” Right now depression shows up and lays him flat for a day or two. But we don’t know why it shows up. We have no way to make it go away. What if some time it doesn’t leave? This is the horrible fear that I lock away in the back of my brain during the hard days. I see the depression and I know it could destroy us, because when Howard is deep into a depressed day, he is different. His thoughts and attitudes are different. His capabilities shift. The Howard I love and depend on is gone and all I can do is wait for him to come back.

So that is a thing you should know too. Depression can be traumatic and terrifying for the loved ones because they are forced to face being powerless. Of course, that one is unlikely to be news to you. But it means that you are at a higher risk for anxiety and depression yourself. Be on the lookout for that. Be aware that you might also need help and treatment. It is possible that the best thing you can do for your loved one is to go see a therapist or spiritual advisor yourself. You need a support network, because this is a hard load to carry. Faith is a huge part of my support network. I have conversations with God about Howard’s depression all the time. I feel like we’re partners in helping take care of this amazing person we both love. I truly believe that any path that Howard walks toward eliminating depression forever will be an inspired walk of faith. I hope that we’re on that path already even though I can’t tell how far we’ve come or how far we have left to go. But if this is a lifetime-long walk, I’m okay with that. I didn’t sign on to be married to Howard just for the easy stuff.

Preserve your own balance. In order not to be pulled into depression myself on the days that Howard is down, I have to actively shield myself against his moods. This is hard, because I am a naturally empathetic person and I am highly attuned to the emotional states of my family members. Sometimes this means that I need to have physical space from Howard when he’s depressed. Sometimes Howard provides that space deliberately in acts of heroism. In recent memory we had a family party on a day when Howard was depressed. It was the first time I’d been able to enjoy the company of my siblings in a very long time. Howard hid himself away, keeping his bleakness contained so that I could enjoy the event. I recognized his sacrifice and told him that I did. The verbal recognition was critical so that he knew that I knew that he was making a special effort for me. Also so that he knew that I was aware of his depression and he was not abandoned with it. It was our way of working together to make sure that the depression did not ruin a party. We hope for future parties where Howard and I can both attend.

Listen without judgment. This is probably the most important function that I serve for Howard when he is depressed. He needs to process and think through what he is feeling. Over the years we’ve learned how to communicate the depression without wallowing in it. It is rare that I’m able to say something that alleviates the depression, but not being left alone with it is a huge help.

Talking about it can help. There is a silence that blankets anything that hints at mental weakness or illness. People are afraid to admit that they’re struggling with mental health issues. Some of those fears are founded in reality. Employers think twice before hiring someone with admitted mental health struggles. People look askance. The stigma is real. But part of what helped convince Howard to get help was when he first started talking about the depression with trusted friends. Part of his ongoing process is to speak up on the internet when he’s having a bad week. The responses to those posts are overwhelming support from others who have walked similar paths and thanks from people who are grateful that someone is willing to speak up. This is the reason I wrote this (very long) post. Because somewhere out there is someone who needs it. And because once I began it, I realized that I needed to say all of it. I’m certain there will be more things to say on a different day, but this is my last thought for you right now. Hang in there. You and your loved one can get through this and find a better place. Howard and I did.

Edited to add: As a result of questions and discussions prompted by this post, I’ve decided to add links to some support organizations which may be useful.

NAMI is the National Alliance on Mental Illness. They have a page dedicated to helping people connect with support groups and discussion groups both online and in person.

Google also led me to DBSA the Depression and Bipolar Support Alliance. They also have a page devoted to helping people connect with the resources that they need.

There is the ASCA, Adult Survivors of Child Abuse. If a history abuse of any kind factors into your loved one’s depression, it is probably best to talk to someone who knows how to thrive after that.

If you want a faith centered approach to healing, you might consider looking at the LDS addiction recovery program. Reading through their 12 steps, most of it applies if you just substitute “depression (or anxiety, or mental illness) for the word addiction. You do not have to be a member of the LDS (mormon) faith to use these services.

I am certain that these are only the beginning of the resources that are available to you both locally and internationally. The world is full of people who understand your pain and would be delighted to help you find a happier way to live.