Author name: Sandra Tayler

Disorders in Hiding

/ / 6 Comments

Sometimes autism doesn’t flap arms or drone on forever on the infinitesimal details of one particular topic. Sometimes Autism can look like a friendly kid who calls his friends over and is the instigator of group play. Autism can be wearing the exact same outfit every single day because your clothes are part of who you are and you don’t feel like yourself in different clothes. Often this means duplicates of clothes. Autism can be standing in a group full of people who are all talking and laughing, wanting to be part of it, but they only talk about things you don’t care about. Autism can be refusing to go into the lunch room because it is too loud and ending up sitting in a hallway off by yourself feeling lonely. Autism can be feeling certain that you made an agreement with another person only to discover that they understood what you said completely differently from how you meant it. Autism can be being unable to do an assignment because you can’t wrap your head around how to begin. Then everyone gets angry with you because it looks simple to them. Autism can look like stubbornness and laziness.

OCD does not always flip light switches, count posts, or line things up in rows. Sometimes OCD is becoming actively uncomfortable and antsy if someone else is sitting in the spot where you expected to sit. This discomfort may cause you to lash out in anger. Then you have to face the consequences of your angry outburst. OCD can be carrying all of your books and school papers in your arms because that is the only way you can constantly be sure you have everything. OCD can be not throwing away any school papers and carrying them all in the ever-growing stack because it would be terrible to not be prepared should the teacher ask students to pull out an old assignment from three months ago. OCD can be wrapping every thought with a cloud of tangential and descriptive information which obscures the thing you want to tell other people. Only you can’t skip any of the information because it is all connected. And if anyone tries to interrupt the thing you’re saying, you get angry, because you weren’t finished, and the thing you were saying is important and must be completed. OCD can be correcting the pronunciations of the people around you because if a word is said wrong, your brain can not let go of that word until it is spoken correctly. One of these things is a quirk. All of these things together is a disorder that affects pretty much every hour of every day and every relationship in your life. OCD can look like disobedient defiance, rudeness, and disrespect.

Anxiety does not always worry about things. Sometimes anxiety is a heart that races and palpitates even though there is nothing going on and the person feels calm. Anxiety can be feeling antsy and agitated, like post-adrenaline shakes, even though nothing happened. Anxiety can be imagining a dozen possible futures and making plans to be prepared for all of them. Anxiety can be hyper-organization that other people praise, and which is actually useful, except that it never allows rest, vacation, or breaks. Preparation that never switches off. Anxiety can be needing to leave an event because there are too many people moving around and talking, making you unable to track everything. And you have to track everything, because if something goes wrong, you must be ready for it. Anxiety can be skipping work opportunities because they require face-to-face interaction. Anxiety can be checking up on other people’s work until they get annoyed with you, but you can’t not check because you have to be prepared if they didn’t do their job. Anxiety can look like a nagging and controlling personality.

ADHD is not always easily distracted. ADHD can be so focused on a project that suddenly you realize that people are standing over you angry because they’ve been trying to get your attention. ADHD can be the sound of pencils scratching on paper overpowering the thoughts in your head. ADHD can be deciding that today you will REALLY pay attention and make sure you get all your assignments, only to realize that you missed hearing an assignment because you were busy planning how not to miss assignments. ADHD is being lost in the thoughts in your head. ADHD can mean always feeling lost or out of step because everyone else knows what is going on, but you haven’t any idea what the instructions were. ADHD can be a jittery leg, all your pencils chewed to bits, and fingers that twist and play with whatever they touch, all without you intending to do any of it. ADHD can be lost items and missed appointments because at the important moment your thoughts were on something else. ADHD can look like chronic disorganization, negligence, and a person who doesn’t care enough to get things done.

Depression does not always stay at home lying in bed feeling in a pit of despair. It is not always dramatic or suicidal. Depression can be doing all the tasks that are required of you, but enjoying none of them. Depression can be feeling like things will never be better than they are now. Depression can be binge watching television shows on Netflix, because then you don’t have to listen to your own thoughts. Depression can be playing endless games of solitaire to fill the spaces between required activities. Depression can be deciding to stay home rather than go out with friends because being social sounds too exhausting. Depression can be having friends drift away because you’re not the person you used to be and you don’t have emotional energy to maintain the friendships. Depression can be crying at seemingly random times over things which wouldn’t normally cause tears, like a happy song playing, or the store being out of the cereal you like. Depression can be a messy house because you only have so much energy to do things and laundry didn’t make the list this week. Depression can be not bothering to brush your hair or change clothes because it is too much work. Depression can look like a person who is standoffish, slovenly, and unfriendly.

So if you have to deal with a person and they are awkward, rude, nagging, standoffish,or negligent, pause a moment before you condemn them. It may be that they do have the character flaw you perceive in them. Or it may be that the person is fighting a daily battle you can’t see, and they need your compassion instead of your anger.

Disorders in Hiding Read More »

Happy New Year

/

photo

I put up the new wall calendar today. The calendar used to be the scheduling hub of the entire household. On it were all the appointments and events. If something needed to be remembered, it went on the calendar. These days most of the appointments never even get written on the wall calendar. They’re hidden away in my electronic calendar where they are far more useful to me. Yet the wall calendar is still useful. I come and look at it any time I need an over all view of the next weeks, months, or year. The kids reference it all the time when they need to count days or find out when the next school holiday is. So I spent an hour putting down the big events and birthdays for the year. Then I pinned it to the wall, moving it over slightly because the old spot had so many pin holes it was hard to get the pin to stick. Some day we’ll use piles of spackle to repair all those holes, but not today.

For now I’ll listen to the booming of the neighbor’s fireworks and glance at them out of my front room window, past the glow of the Christmas lights on our tree out front. The holiday season will soon be over, I should enjoy this last bit of it.
photo(1)

Happy New Year Read More »

Applying for Passports

/ / 1 Comment

It turns out that if you arrive at the passport office and the nice lady discovers that the name on your driver’s license is misspelled (which no one noticed at any point in the past four years), that the wisest course of action is to put applying for a passport on hold and instead apply to have the driver’s license corrected. The nice passport lady explained that the conflict of spellings might upset the passport people so much that they would begin to question the validity of all provided documents and we would then be digging around for “proofs of identity” such as yearbook photos. (Apparently this is the reason that I’ve been shelling out money for kids yearbooks all these years. Who knew? Also, I may end up regretting throwing mine out. Though since my passport is already acquired I’m probably okay.)

Since Kiki’s identification was the one misspelled, we dropped all the other family members back at the house. Then Kiki and I went on a ninety minute adventure at the DMV which was exactly like sitting in a chair and being bored for ninety minutes. We did have the entertainment of a young woman behind us who kept declaring that she felt bad about some relationship thing that was going on in her life. I couldn’t hear her mother’s replies. I wasn’t trying to hear the young woman either, but she so clearly enunciated and projected every word that I couldn’t help it. Eventually they left before their number was called. Presumably to go apologize to the boy in question. After that the only entertainment available was reading the looped slideshow about the value of organ donation, or playing games on our phones. Eventually Kiki’s number was called. Two minutes of paperwork was done. And now we get to wait four weeks for Kiki’s new license to show up. So that we can apply for her passport and then wait six weeks for that to arrive.

In the meantime the passports for the other kids should show up in about six weeks. Unless they’re rejected for some minor error, like the fact that Gleek wore her glasses in the photo. The passport lady said it was probably fine and she’s pretty expert at her job, so: fingers crossed.

All of this documentation effort is so that we can take the kids with us on a cruise next fall. Also, I like the idea of my kids having passports so that if we were to decide to take some other trip out of the country, we could just go.

Now it is 3pm and I really should be settling in and getting some work done, but my brain is tired from everything above. I might nap a bit instead.

Applying for Passports Read More »

Perspectives

/ / 1 Comment

I met my friend for lunch. We hadn’t seen each other for several months and both of us had many things to tell. Over the next three hours we talked. I ended up taking home most of my food because talking was more important than eating. As I spoke I was surprised to realize how much good news I had to share. Somehow in the past few months many of my things have become incrementally better. There have been no major transformations, just an accumulation of days and choices that trended in good directions. I hadn’t quite realized this until I listened to myself talk to her.

Of course I also spilled my frustrations over the things that are still hard. This included the new, and still ongoing, situation with one of my kids. Yet even there the only real source of discouragement is that between where I am now and the point where it will all be fine again are an unknown number of emotionally charged conversations. I will have to navigate it all carefully and the thought makes me tired.

There are only a few more days between me and the launch of a new year. For me the year truly begins next Monday when we resume our regular school and work schedule. I’ve already mapped out the things I will be doing on the days in between. Those days will pass quickly. I’ll be taking them one by one, because that method has worked the last few months. And maybe somewhere up ahead of me is another moment when I can look back and see how much better things are.

Perspectives Read More »

Triforce Heroes

/

One of the games which made an appearance on Christmas was three copies of Triforce Heroes. This is a Zelda game for 3DS which is best enjoyed with three players who are sitting in the same room with their three devices. At first it was Kiki, Link, and Patch, but over time Patch lost interest and went off to play other games. This left Kiki and Link in need of a third player. They drafted me.

I’m not a particularly experienced player of video games. I played Nintendo 64 quite a bit when the kids were young because they liked to watch. Recently I picked up the new version of Majora’s Mask and have been playing through that. But I don’t have the practice or twitch speed that my two kids have. This is fine. My job is to follow along, not get hit by the bad guys and to assist in the solving of puzzles. I like not being in charge. I like moving through a world where the kids are the experts and they look out for me. “Mom you just stay up there until I kill all the skeletons.” “If you run close to the middle when it shoots, you won’t get hit by the laser.” Occasionally I show unexpected expertise and then I get a “Way to go Mom!”

Of course the game sometimes gets frustrating. There are times where I lose track of which little person I’m piloting on the screen and I accidentally run off the edge. Or none of us know how to beat a monster and it kills us over and over again. I may have said things like “Agh! I’m no good at this!” and it is possible that I stomped my feet on the floor in frustration. Then I looked up to see my kids looking at me with wide eyes. “Mom, do we need to take a break?” No. I was fine. The frustration was momentary. It comes and goes in the intensity of the moment. They just aren’t used to seeing me distressed in that particular way. So we all took a deep breath and agreed we’d give the frustrating monster one more try. We made a plan for who would take which role in the attack. And then we beat the thing. Together.

Triforce Heroes is a brilliant game for getting three people to practice team work. We try things and they don’t work, so we try different things. We talk about what we’re seeing, because it is impossible to complete the game unless we cooperate. I’m having a great time playing with my kids. I needed the challenge, the cathartic frustration, and the uproarious laughter. I kind of hope that Patch stays uninterested so I can finish the story with the others.

Triforce Heroes Read More »

Anxious Thoughts

/ / 2 Comments

One of my least favorite forms of anxiety is when there is an incident involving one of my kids and an adult from outside my house. The incident spawns a half dozen emotionally charged conversations which range between damage control and emotional processing. I then spend the next two days and nights with every spare cycle in my brain attempting to re-write it all. Could I have prevented it? I should have been more confrontational. I should have been more conciliatory. I should not have said that. Yes I should have, I should have said it stronger. Here is a thing I should have said, but didn’t. Here is a thing I think and feel, but didn’t say because it wasn’t constructive. Except maybe I should have said it. Here is another thing I should have made clear. Except I already tried to make it clear, didn’t I? Can I be blamed if the other party is incapable of hearing what my child and I are saying? I blame me anyway. Except I don’t because logic tells me that the incident occurred because the other adult overstepped bounds. Not our fault. But I should have handled it better.

And then there is the time that my brain spends trying to script out what I should say and do for imagined future conflicts. Because this isn’t over. More conversations will need to be had. And I dread them. Because I don’t expect them to go well. And I have to figure out how to stay focused on the important goals and not on venting feelings. My brain is really good at making up terrible scenarios where everything goes wrong from here and relationships crash and burn. It plays these scenarios out in the spaces between thoughts of conversational re-scripts. While I’m trying to be asleep.

The good news is that everyone inside my house is in accord about what happened. Conflict does not dwell inside my house. The other good news is that my child is more loving and Christ-like than I am in this. I may have to follow my child’s lead, which is right in line with scriptural instruction. More good news is that I have spoken to other adults in my child’s life and they are allies to my goals. I have not asked them to step into battle, but they will make sure that they take extra care to love and accept my child in the next few weeks. My child will need that.

Now if I can just get the noise in my brain to quiet down enough so that I can think clearly, that would be nice. I need clear thoughts to hear inspiration and guidance before I have any more conversations or take any actions.

Anxious Thoughts Read More »

The Day After Christmas

/

On the day after Christmas I spend time trying to remember what I was doing before the holiday took over all my available project-focused energy. I also spend time reading and playing a game with my kids. Howard is more focused than I am, he’s back at the drawing table, ready to get the work done. I feel guilt that I’ve not been a better business partner in the past few weeks. I would like to be able to match his creative drive instead of feeling like I’ve been a drag on the entire system.

In just one week we’ll have a new year. I don’t know how I feel about that. I wish that I did. I wish I could have a clear emotion of optimism and excitement, though I suppose I’m glad not to be mired in dread. I guess I feel much as I did last December. Though we’re all in a better place now than we were then. I still can’t see a clear path ahead, but the trail isn’t so dark and we have more maps than we had before.

On the first day of 2015 I said “Maybe at the end of the year I’ll be able to look back and tell a story about how it went.” I find myself as reluctant to formalize that story now as I was to predict it last January. The year was what it needed to be. Some of the hard things were necessary. I suspect that some of them were not. This next year will have hard things in it, but I hope it will have more triumphal moments, times where we stand in a good place disbelieving that we managed to arrive there. I would like one of those for each of my children who have been struggling. Bonus if Howard and I get one as well.

The path to those moments are paved with hard work, so I suppose I should get to it.

The Day After Christmas Read More »

Gifts of Food

/

photo

On first glance it is just a box of chocolates, a nice gift. But this box was not purchased, every chocolate in that box was hand made by a great-grandmother assisted by her children and grand children. There are 55 different kinds of chocolates in that box. Creating them is a project that spans from September through December. Or so the note that came with the box tells me. This box came as a gift from a neighbor who knows we’ve been having a rough time. I feel honored that he chose to include us in what is obviously a treasured family tradition.

This is not the only gift that has come to our door in the past few days. We have kind and generous neighbors so there have been all sorts of snacks and treats. I am grateful for them all. Each is evidence of the goodness of people. They took time to think of us. I am especially grateful because other than writing a few Christmas cards, I haven’t had energy to think of Christmas beyond the walls of my house.

I look at these gifts and I’m once again astonished at the many forms that people use to express their creativity, gratitude, and love. Many of these people would be surprised that I use the word creativity in reference to their cookies or roll of wrapping paper. Yet even a hastily purchased candy bar with a note slapped on it is a creation. It seeks to create a feeling of connection and remembrance. It seeks to strengthen a friendship. The thoughts really do count for a lot.

Gifts of Food Read More »

Smashed

/ / 4 Comments

photo

It was not the outcome that anyone intended, yet somehow we ended up with shards of something that used to be whole. The shards were sharp, able to do more harm if they were not handled carefully. This is the story of many of my days these past couple of years. It is the story of yesterday when a person came to my house to talk to me about behavioral issues with one of my kids. The person departed and I was left with shards, not even sure where I fit in the metaphor. Am I the broken thing? Or am I the one who has to figure out how to clean up? Feels like both.

I went to my room and cried for a while. Then I talked with my child and we both cried for even longer, because harm has been done and needs to be made right. My child is both harmed and the one at fault. I have to spend energy preventing my mind from trying to analyze all of the moments that led up to the one where things were smashed. As if I could alter the outcome by finding decision points that led to alternate timelines. My mind also tells me that I’m blowing it all out of proportion. It is, after all, only a small broken thing. Clean up will be quick and we’ll move onward.

Except that I end up smashed (or cleaning up after smash) so often lately. Those tiny shards scatter themselves and sometimes I find my self bleeding because of shrapnel from something I thought I cleaned up long ago.

This too is part of the holiday. The house is filled with beauty, but also with things that are more prone to breaking. The pressure to make sure the moments are glowing and meaningful, also means that some of the fragile things will crack. I may be one of the fragile things. I am to be my best self, but that is difficult in a season which increases the demands on my limited resources. Even the articles, speeches, and pleas to simplify are commandments with which I must struggle to comply. Thus I find myself contemplating the shards of an ornament on the floor of the front room. Thinking about all the ways in which Christmas breaks people.

And also the ways that it heals people. And how sometimes things must be broken before they can become something else. And how the metaphor begins to fall apart before I’ve found my way through to an epiphany. I would like to have an epiphany. I would like to have a shining moment where I can clearly see that all the smashed days were necessary, part of a grand plan designed to help me and mine grow. I’m certain that some of them were critical. Perhaps yesterday was one of them. I’m also certain that some of them were just the result of human beings clumsily bumping into each other and accidentally doing harm. It would be nice to be able to see which days were which.

Or maybe it wouldn’t. Maybe I’m better off treating all the smashed up days as if they were important. Maybe it is only in trying to find meaning in the shards of something broken that the brokenness gains any meaning at all. I do believe there is a plan, and it begins with me fetching a broom. We learn by doing, struggling, smashing, cleaning up, and moving on.

Smashed Read More »